Open Humans Uploader

Donate your data for science

You can help the community by donating your data to research projects! This helps scientists to pay it forward, develop new scientific ideas and make open source closed loop systems better known. AAPS is ready to synchronize your data with Open Humans, a platform allowing you to upload, connect, and store your personal data – such as genetics, activity and health data.

You retain full control about what happens to your data and what projects you want to support by giving them access to your data. Depending on the project you have joined, data is evaluated and used by them in different ways and extent.

The following data will be uploaded to your Open Humans account:

• Glucose values

• Careportal events (except notes)

• Extended boluses

• Profile switches

• Total daily doses

• Temporary basals

• Temp targets

• Preferences

• Application version

• Device model

• Screen dimensions

Secret or private information such as your Nightscout URL or API secret will not be uploaded.

Setup

1. Create your account on Open Humans if not already done. You can reuse your existing Google or Facebook accounts if you wish to.

2. Enable the Open Humans plugin in Configuration > Communication.

3. Tap Settings on the Open Humans card. You can restrict uploads to times when the phone uses Wi-Fi (WiFi only) and/or is charging (Charging only).

4. Tap Open plugin on the Open Humans card, then tap Setup.

5. On the Welcome to Open Humans screen, tap Next. Read the Consent screen carefully: it shows the terms of use and which data is uploaded and not uploaded.

6. Switch on I understand and agree. (1) and tap Login to Open Humans (2).

7. Open Humans website will be opened. Login with your credentials.

8. Decide whether you want to hide your AAPS Uploader membership in your public Open Humans profile (1).

9. Click Authorize project (2).

Older screenshot

The screenshots above show an earlier version of the Open Humans website and still use the old project name AndroidAPS Uploader. The steps are the same.

10. Back in AAPS, the Final touches screen asks whether you want to proceed. Tap Proceed.

11. Wait until We’re done! appears, then tap Close. From now on, your phone uploads data in the background from time to time.

12. The Open Humans plugin screen now shows your Project Member ID. Tap Upload now if you want to start an upload right away.

13. Tap Logout if you want to stop uploading data to Open Humans.

14. Android notification will inform you about running upload.

Older screenshot

The screenshot above is from an earlier AAPS version. In AAPS 4 the confirmation screens are Final touches and We’re done!, there is no queue size, and the buttons are Upload now and Logout.

15. You can manage your data by logging in to the Open Humans website.

Sharing Opportunities

The ‘OPEN’ project

The ‘OPEN’ project brings together an international and intersectoral consortium of patient innovators, clinicians, social scientists, computer scientists and patient advocacy organizations in order to investigate various aspects of Do-it-Yourself Artificial Pancreas Systems (DIY APS) that are used by an increasing number of people with diabetes. For more details see their website.

In September 2020 the ‘OPEN’ project launched a survey including the option to donate data you uploaded to Open Humans. A tutorial how to donate your data to the ‘OPEN’ project is available on their site and within the survey itself.

OpenAPS Data Commons

The OpenAPS Data Commons was created to enable a simple way to share data sets from the DIYAPS community for research. The data is shared both with traditional researchers who will create traditional research studies, and with groups or individuals from the community who want to review data as part of their own research projects. The OpenAPS Data Commons uses the ‘Open Humans’ platform to enable people to easily upload and share their data from DIYAPS including AAPS, Loop, and OpenAPS.

You can get your data into Open Humans via one of three ways:

1. use the AAPS uploader option to get your data into Open Humans

2. use the Nightscout Data Transfer to get your data into Open Humans

3. manually upload data files into Open Humans.

Once you’ve created an account and gotten your data flowing into Open Humans, make sure to also join the OpenAPS Data Commons in order to donate your data for research if you choose.

Terms of Use

This is an open source tool that will copy your data to Open Humans. We retain no rights to share your data with third parties without your explicit authorization. The data the project and app receive are identified via a random user ID and will only be securely transmitted to an Open Humans account with your authorization of that process. You can stop uploading and delete your upload data at any time via www.openhumans.org. Beware that some projects that receive data may not support this.

Also see Open Humans Terms of Use.

Data Privacy

Open Humans takes care of protecting your privacy by assigning a numerical ID to you for each project. This allows projects to recognize but not identify you. The Application ID uploaded by AAPS is similar and only helps administrate the data. More information can be found here:

• Open Humans Data Use Policy

• Open Humans GDPR